Development of a storytelling communication facilitation tool (SCFT) to facilitate discussion of complex genetic diagnoses between parents and their children: A pilot study using 22q11.2 deletion syndrome as a model condition-Reference-Cited by-同舟云学术

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Development of a storytelling communication facilitation tool (SCFT) to facilitate discussion of complex genetic diagnoses between parents and their children: A pilot study using 22q11.2 deletion syndrome as a model condition

Published:2023-12 Issue: Volume:2 Page:100115
ISSN:2772-6282
Container-title:PEC Innovation
language:en
Short-container-title:PEC Innovation

Author:

Bogatan Simina,Shugar Andrea,Wasim Syed,Ball Susan,Schmidt Cathryn,Chitayat David,Shuman Cheryl,Cytrynbaum Cheryl

Funder

National Society of Genetic Counselors

University of Toronto

Publisher

Elsevier BV

Reference27 articles.

1. “How should i tell my child?” Disclosing the diagnosis of sex chromosome aneuploidies;Dennis;J Genet Couns,2015

2. Parents sharing information with their children about genetic conditions;Gallo;J Pediatr Health Care,2005

3. Parents and children’s communication about genetic risk: a qualitative study, learning from families experiences;Metcalfe;Eur J Hum Genet,2011

4. Exploring the discussion of risk of sudden cardiac death;Wiley;Pediatr Cardiol,2016

5. Communicating inherited genetic risk between parent and child: A meta-thematic synthesis;Rowland;Int J Nurs Stud,2013

Cited by 1 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Communication in genomic and precision medicine: Editorial – PEC Innovation;PEC Innovation;2023-12

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