Parents’ and children's communication about genetic risk: a qualitative study, learning from families’ experiences
Author:
Publisher
Springer Science and Business Media LLC
Subject
Genetics(clinical),Genetics
Link
http://www.nature.com/articles/ejhg2010258.pdf
Reference25 articles.
1. Holt K : What Do We Tell the Children? Contrasting the Disclosure Choices of Two HD Families Regarding Risk Status and Predictive Genetic Testing. J Genet Counseling 2006; 15: 253–265.
2. Gallo AM, Angst D, Knafl KA, Hadley E, Smith C : Parents sharing information with their children about genetic conditions. J Pediatr Health Care 2005; 19: 267–275.
3. Tercyak KP, Peshkin BN, Streisand R, Brogan BM, Lerman C : Psychological issues among children of hereditary breast cancer gene (BRCA1/2) testing participants. Psychooncology 2002; 10: 336–346.
4. Fanos JH, Puck JM : Family pictures: growing up with a brother with X-linked severe combined immunodeficiency. Am J Med Genet 2001; 98: 57–63.
5. Canam C : Coping with feelings: chronically ill children and their families. Nursing Papers: Perspect Nurs 1987; 19: 9–21.
Cited by 97 articles. 订阅此论文施引文献 订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献
1. Family Information Management in the Context of Inherited Conditions: An Integrative Review;Journal of Family Nursing;2024-08
2. The motivations and methods behind sharing a pediatric Prader–Willi syndrome diagnosis;American Journal of Medical Genetics Part A;2024-06-21
3. Evidence-based recommendations for delivering the diagnosis of X & Y chromosome multisomies in children, adolescents, and young adults: an integrative review;BMC Pediatrics;2024-04-22
4. Supporting a family living with young-onset dementia: a case study;British Journal of Neuroscience Nursing;2024-02-02
5. How Do Siblings Understand Autism?;2024
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线，采集、加工和组织学术论文而形成的新型学术文献查询和分析系统，可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容，当前同舟云学术共收录了国内外主流学术期刊6万余种，收集的期刊论文及会议论文总量共计约1.5亿篇，并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询！咨询电话：010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3