On moving targets and magic bullets: Can the UK lead the way with responsible data linkage for health research?

Author:

Laurie G.,Ainsworth J.,Cunningham J.,Dobbs C.,Jones K.H.,Kalra D.,Lea N.C.,Sethi N.

Funder

10-funder consortium: Arthritis Research UK

British Heart Foundation

Cancer Research UK

the Economic and Social Research Council

the Engineering and Physical Sciences Research Council

the Medical Research Council

the National Institute of Health Research

the National Institute for Social Care and Health Research (Welsh Assembly Government)

Chief Scientist Office (Scottish Government Health Directorates)

Publisher

Elsevier BV

Subject

Health Informatics

Reference54 articles.

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2. NHS England, NHS England acts in response to concerns about information sharing-statement from Tim Kelsey, National Director for Patients and Information, 19 Feb 2014 available at http://www.england.nhs.uk/2014/02/19/response-info-share/ (accessed 11.07.14).

3. Digital Health.Net, Care.data re-launched this month, 11 June 2015, available at http://www.digitalhealth.net/news/29947/ (accessed 02.08.15).

4. The Social licence for research: why care.data ran into trouble 41:5;Carter;J. Med. Ethics,2015

5. Department of Health, Information: To share or not to share? The Information Governance Review, March 2013 available at: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/192572/2900774_InfoGovernance_accv2.pdf (accessed 14.07.14).

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