Navigating care for rare diseases: Caregiver and patient advice for families and clinicians managing care for vascular malformations-Reference-Cited by-同舟云学术

Navigating care for rare diseases: Caregiver and patient advice for families and clinicians managing care for vascular malformations

Published:2023-02 Issue: Volume:107 Page:107569
ISSN:0738-3991
Container-title:Patient Education and Counseling
language:en
Short-container-title:Patient Education and Counseling

Author:

Kerr Anna M.,Bereitschaft Christine,Duty Kayla M.,Sisk Bryan A.

Publisher

Elsevier BV

Subject

General Medicine

Reference24 articles.

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1. Dyadic coping experiences of parents of children with vascular anomalies;Pediatric Blood & Cancer;2024-08-22

2. The Lived Experience of Patients with Vascular Malformations: A Qualitative Meta-synthesis;Journal of Vascular Anomalies;2024-04-24

3. Psychometric Evaluation of the “Providing Validation” Measure in Vascular Anomalies;Journal of Vascular Anomalies;2024-04-02

4. Factors affecting the ability of patients with complex vascular anomalies to navigate the healthcare system;Orphanet Journal of Rare Diseases;2024-01-18

5. Significant Experiences Caring for Vascular Anomalies: A Survey of Caregivers and Adult Patients;Journal of Vascular Anomalies;2024-01-10