Value of the Rare Disease Registry of the Italian Region Friuli Venezia Giulia-Reference-Cited by-同舟云学术

Value of the Rare Disease Registry of the Italian Region Friuli Venezia Giulia

Published:2019-09 Issue:9 Volume:22 Page:1003-1011
ISSN:1098-3015
Container-title:Value in Health
language:en
Short-container-title:Value in Health

Author:

Valent Francesca,Deroma Laura,Moro Alessandro,Ciana Giovanni,Martina Paolo,De Martin Fabio,Michelesio Elisa,Da Riol Maria Rosalia,Macor Daniela,Bembi Bruno

Publisher

Elsevier BV

Subject

Public Health, Environmental and Occupational Health,Health Policy

Reference33 articles.

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5. Why rare diseases are an important medical and social issue;Schieppati;Lancet,2008

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1. High-cost drugs for rare diseases: their expenditure and value based on a regional area-based study;Health Services Management Research;2023-01-10

2. Healthcare Burden of Rare Diseases: A Population-Based Study in Tuscany (Italy);International Journal of Environmental Research and Public Health;2022-06-21

3. Pediatric single large-scale mtDNA deletion syndromes: The power of patient reported outcomes;Molecular Genetics and Metabolism;2021-12

4. Paradoja de la rareza: a propósito del porcentaje de población afectada por enfermedades raras;Gaceta Sanitaria;2020-11

5. Charting Early Developmental Trajectory of a Pilot Rare Disease Registry in Slovenia;STUD HEALTH TECHNOL;2020