Balancing the Optimal and the Feasible: A Practical Guide for Setting Up Patient Registries for the Collection of Real-World Data for Health Care Decision Making Based on Dutch Experiences

Author:

de Groot Saskia,van der Linden Naomi,Franken Margreet G.,Blommestein Hedwig M.,Leeneman Brenda,van Rooijen Ellen,(Koos) van der Hoeven J.J.M.,Wouters Michel W.,Westgeest Hans M.,Uyl-de Groot Carin A.

Publisher

Elsevier BV

Subject

Public Health, Environmental and Occupational Health,Health Policy

Reference33 articles.

1. Registries for Evaluating Patient Outcomes: A User’s Guide (2nd ed.);Gliklich,2010

2. Comparisons of Food and Drug Administration and European Medicines Agency Risk Management Implementation for Recent Pharmaceutical Approvals: Report of the International Society for Pharmacoeconomics and Outcomes Research Risk Benefit Management Working Group

3. Dutch National Health Care Institute (ZIN) (formerly named CVZ) Assessment procedure for inpatient drugs [in Dutch: Procedure beoordeling intramurale geneesmiddelen] 2006. Diemen, The Netherlands. Report no.: 26022597.

4. Dutch National Health Care Institute (ZIN) (formerly named CVZ). Specialist drugs package management [in Dutch: Pakketbeheer specialistische geneesmiddelen] 2013. Diemen, The Netherlands. Report no.: 2013077869

5. Dutch National Health Care Institute (ZIN) (formerly named CVZ). Guidance for outcomes research [in Dutch: Leidraad voor uitkomstenonderzoek ׳ten behoeve van de beoordeling doelmatigheid intramurale geneesmiddelen׳] 2008. Diemen, The Netherlands. Report no.: 28113706.

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