Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries-Reference-Cited by-同舟云学术

Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

Published:2022-05 Issue:5 Volume:24 Page:1120-1129
ISSN:1098-3600
Container-title:Genetics in Medicine
language:en
Short-container-title:Genetics in Medicine

Author:

Milne Richard^ORCID,Morley Katherine I.,Almarri Mohamed A.,Atutornu Jerome,Baranova Elena E.,Bevan Paul,Cerezo Maria,Cong Yali,Costa Alessia,Feijao Carolina,de Freitas Cláudia,Fernow Josepine,Goodhand Peter,Hasan Qurratulain,Hibino Aiko,Houeland Gry,Howard Heidi C.,Hussain Sheikh Zakir,Malmgren Charlotta Ingvoldstad,Izhevskaya Vera L.,Jędrzejak Aleksandra,Jinhong Cao,Kimura Megumi,Kleiderman Erika,Liu Keying,Mascalzoni Deborah,Mendes Álvaro,Minari Jusaku,Nicol Dianne,Niemiec Emilia,Patch Christine,Prainsack Barbara,Rivière Marie,Robarts Lauren,Roberts Jonathan,Romano Virginia,Sheerah Haytham A.,Smith James,Soulier Alexandra,Steed Claire,Stefànsdóttir Vigdis,Tandre Cornelia,Thorogood Adrian,Voigt Torsten H.,Wang Nan,Yoshizawa Go,Middleton Anna^ORCID

Publisher

Elsevier BV

Subject

Genetics (clinical)

Reference35 articles.

1. Returning Individual Research Results to Participants: Guidance for a New Research Paradigm,2018

2. Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis;Schickhardt;BMC Med Ethics,2020

3. APPLaUD: access for patients and participants to individual level uninterpreted genomic data;Thorogood;Hum Genomics,2018

4. Disclosing individual results of clinical research: implications of respect for participants;Shalowitz;JAMA,2005

5. Return of individual genomic research results: are laws and policies keeping step?;Thorogood;Eur J Hum Genet,2019

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