Offering Individual Genetic Research Results: Context Matters-Reference-Cited by-同舟云学术

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Offering Individual Genetic Research Results: Context Matters

Published:2010-06-30 Issue:38 Volume:2 Page:
ISSN:1946-6234
Container-title:Science Translational Medicine
language:en
Short-container-title:Sci. Transl. Med.

Author:

Beskow Laura M.¹²,Burke Wylie³⁴

Affiliation:

1. Center for Genome Ethics, Law and Policy, Duke Institute for Genome Sciences and Policy, Durham, NC 27708, USA.

2. Duke Translational Medicine Institute, Durham, NC 27708, USA.

3. Department of Bioethics and Humanities, University of Washington, Seattle, WA 98195, USA.

4. Fred Hutchinson Cancer Research Center, Seattle, WA 98109, USA.

Abstract

Beyond a fundamental duty to rescue, a one-size-fits-all threshold cannot be developed for decisions about the return of individual results.

Publisher

American Association for the Advancement of Science (AAAS)

Subject

General Medicine

Reference24 articles.

1. Subjects matter: a survey of public opinions about a large genetic cohort study

2. The Debate Over Research on Stored Biological Samples

3. Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right

4. Prospective Biorepository Participants' Perspectives on Access to Research Results

5. Assessing the understanding of biobank participants

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