Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right-Reference-Cited by-同舟云学术

Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right

Published:2010-06-23 Issue:37 Volume:2 Page:
ISSN:1946-6234
Container-title:Science Translational Medicine
language:en
Short-container-title:Sci. Transl. Med.

Author:

Kohane Isaac S.¹,Taylor Patrick L.²

Affiliation:

1. Children’s Hospital Informatics Program, Children’s Hospital, Boston, MA 02115, USA.

2. Children’s Hospital, Boston, MA 02115, USA.

Abstract

Research study participants desire personal study results, creating questions about whether and how such results should be communicated.

Publisher

American Association for the Advancement of Science (AAAS)

Subject

General Medicine

Reference17 articles.

1. Subjects matter: a survey of public opinions about a large genetic cohort study

2. National Bioethics Advisory Commission Research involving Human Biological Materials: Ethical Issues and Policy Guidance (Rockville MD 1999). http://bioethics.georgetown.edu/nbac/hbm.pdf.

3. Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group

4. Informed Consent for Population-Based Research Involving Genetics

5. Public Expectations for Return of Results from Large-Cohort Genetic Research

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