Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics? Participants’ Views from an HIV-TB Genomics Research Project in Botswana-Reference-Cited by-同舟云学术

Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics? Participants’ Views from an HIV-TB Genomics Research Project in Botswana

Published:2021-07-01 Issue:1 Volume:13 Page:48-56
ISSN:2329-4515
Container-title:AJOB Empirical Bioethics
language:en
Short-container-title:AJOB Empirical Bioethics

Author:

Ralefala Dimpho¹²^ORCID,Kasule Mary³^ORCID,Wonkam Ambroise¹⁴^ORCID,Matshaba Mogomotsi³⁵^ORCID,de Vries Jantina¹^ORCID

Affiliation:

1. Department of Medicine, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa;

2. Office of Research and Development, University of Botswana, Gaborone, Botswana;

3. Botswana-Baylor Children’s Clinical Centre of Excellence, Gaborone, Botswana;

4. Deputy Dean’s Office, Faculty of Health Sciences and Groote Schuur Hospital, Cape Town, South Africa;

5. Baylor College of Medicine, Houston, Texas, USA

Funder

National Human Genome Research Institute

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health (social science)

Link

https://www.tandfonline.com/doi/pdf/10.1080/23294515.2021.1941414

Reference31 articles.

1. Is it ethical to deny genetic research participants individualised results?

2. Researchers’ views on informed consent for return of secondary results in genomic research

3. Informed consent for return of incidental findings in genomic research

4. Biobank Research: Reporting Results to Individual Participants

5. Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

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3. Research Participants’ Preferences for Individual Results of Pharmacogenomics Research: A Case of a Ugandan HIV Research Institute;Journal of Empirical Research on Human Research Ethics;2023-07-13