Ethics review for international data-intensive research

Author:

Dove Edward S.1,Townend David2,Meslin Eric M.3,Bobrow Martin45,Littler Katherine6,Nicol Dianne7,de Vries Jantina8,Junker Anne9,Garattini Chiara10,Bovenberg Jasper11,Shabani Mahsa12,Lévesque Emmanuelle13,Knoppers Bartha M.13

Affiliation:

1. J. Kenyon Mason Institute for Medicine, Life Sciences and the Law, School of Law, University of Edinburgh, UK.

2. Department of Health, Ethics & Society, CAPHRI Research School, Maastricht University, The Netherlands.

3. Indiana University Center for Bioethics, Indiana University School of Medicine, Indianapolis, Indiana, USA.

4. Honorary Faculty, Wellcome Trust Sanger Institute, Hinxton, UK.

5. Department of Medical Genetics, University of Cambridge, UK.

6. Wellcome Trust, London, UK.

7. Centre for Law and Genetics, Faculty of Law, University of Tasmania, Australia.

8. Department of Medicine, Faculty of Health Sciences, University of Cape Town, South Africa.

9. Department of Pediatrics, Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.

10. Intel Corporation, Health and Life Sciences, London, UK.

11. Legal Pathways, Aerdenhout, The Netherlands.

12. Centre for Biomedical Ethics and Law, KU Leuven, Leuven, Belgium.

13. Centre of Genomics and Policy, Faculty of Medicine, McGill University, Montreal, Quebec, Canada.

Abstract

Ad hoc approaches mix and match existing components

Publisher

American Association for the Advancement of Science (AAAS)

Subject

Multidisciplinary

Reference12 articles.

1. Council of Canadian Academies, Accessing Health and Health-Related Data in Canada (CCA, Ottawa, 2015); http://bit.ly/AccessHealthData.

2. A Systematic Review of the Empirical Literature Evaluating IRBs: What We Know and What We Still Need to Learn

3. U.S. Code of Federal Regulations 45 CFR §46.101(h) .

4. U.S. Code of Federal Regulations 45 CFR §46.114 .

5. Panel on Research Ethics, Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (Government of Canada, 2014); http://bit.ly/EthicsHumRes.

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