“Let`s put it this way: You can't really live without it” - Digital technologies in routine palliative care delivery: an explorative qualitative study with patients and their family caregivers in Germany

Abstract

Abstract Background Despite ongoing efforts to integrate palliative care into the German healthcare system, challenges persist, especially in providing adequate services in rural and structurally weak areas. The increasing importance of digital technology (DT) in palliative care delivery presents both opportunities and challenges. Objective This study aimed to explore the perspectives and preferences of palliative care patients and their family caregivers regarding the use of DT in palliative care delivery. Methods An exploratory qualitative study was conducted using semi-structured interviews with palliative care patients and their family caregivers across various settings. Participants were selected through gatekeeper-supported purposive sampling. Interviews were analysed using structured qualitative content analysis. Results Nineteen interviews were conducted, reaching theoretical saturation. Three themes emerged: 1) Areas of application of DTs in palliative care; 2) Potential of DTs; 3) Barriers to the use of DTs. Key findings highlighted the preference for synchronous communication using familiar DTs. Participants reported limited perceived value for digital transformation where quality care exists. The study identified requirements for DT development and use in palliative care, including the need for direct and immediate functionality, efficiency in HCP work, and continuous access to services. Conclusion The findings highlight a preference for familiar and easily accessible synchronous DTs. While DT can enhance palliative care efficiency and accessibility, its integration must complement, not replace, personal interaction in palliative care. As DTs continue to grow in scope and use in palliative care, maintaining continued user engagement is essential to optimise their adoption and ensure they benefit patients and their caregivers.