Supporting families and carers of people living with multiple sclerosis: a rapid realist review and realist evaluation

Author:

Bulley Cathy1,Baer Gillian1,Mahal Dawn1,Buckton Christina H1,Donald Stewart2,Lugton Keith2,Gillespie David3,McCormack Brendan1

Affiliation:

1. Queen Margaret University, UK

2. Astley Ainslie Hospital, UK

3. Western General Hospital, UK

Abstract

Supportive interventions are needed for the family and carers of people with multiple sclerosis. A rapid realist review and realist evaluation explored what helps, who it helps, when and how. Literature analysis was synthesised with a thematic analysis of qualitative interviews and focus groups with 49 family and carers of people with multiple sclerosis. The resulting model summarised a family of interventions that could help people develop their capabilities and expand their resources, resulting in more positive outcomes. This may prevent or delay a ‘tipping point’ where capacity to care is overwhelmed by caring roles.

Publisher

Bristol University Press

Subject

Public Health, Environmental and Occupational Health,Health Policy,Sociology and Political Science,Health (social science)

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