Family and Caregiver Characteristics Contribute to Caregiver Change in Use of Strategies and Growth in Child Spoken Language in a Parent-Implemented Language Intervention in Fragile X Syndrome
-
Published:2022-12-14
Issue:6
Volume:7
Page:1630-1644
-
ISSN:2381-4764
-
Container-title:Perspectives of the ASHA Special Interest Groups
-
language:en
-
Short-container-title:Perspect ASHA SIGs
Author:
Potter Sarah Nelson12ORCID, Bullard Lauren12ORCID, Banasik Amy12, Tempero Feigles Robyn12, Nguyen Vivian12, McDuffie Andrea12ORCID, Thurman Angela John12ORCID, Hagerman Randi13ORCID, Abbeduto Leonard12ORCID
Affiliation:
1. MIND Institute, UC Davis Health, Sacramento, CA 2. Department of Psychiatry and Behavioral Sciences, UC Davis Health, Sacramento, CA 3. Department of Pediatrics, UC Davis Health, Sacramento, CA
Abstract
Purpose:
This study examined relationships among family characteristics, caregiver change in use of strategies, and child growth in spoken language over the course of a parent-implemented language intervention (PILI) that was developed to address some of the challenges associated with the fragile X syndrome (FXS) phenotype.
Method:
Participants were 43 parent–child dyads from two different PILI studies, both of which taught parents various language facilitation strategies to support child language. Before starting the intervention, parents reported on their mental health, parenting stress, and parenting competence. This study focused on potential barriers to treatment gains by examining correlations between the measures of parent well-being and (a) parent change in use of intervention strategies taught in the PILI and (b) changes in child language outcomes from pre- to post-intervention.
Results:
Parents in this study had elevated mental health symptoms across several domains and increased rates of parenting stress. Furthermore, although PILI resulted in treatment gains for both parents and children, a variety of parent mental health symptoms were found to be significantly and negatively associated with change in use of strategies and growth in child language over the course of the intervention. Some inconsistent findings also emerged regarding the relationships between parenting stress and competence and change in parent strategy use and growth in child language.
Conclusions:
This study provides preliminary evidence that parents who are experiencing significant mental health challenges may have a more difficult time participating fully in PILIs and that there may be subsequent effects on child outcomes. Future PILIs could benefit from addressing parent well-being as a substantial part of the intervention program.
Publisher
American Speech Language Hearing Association
Reference71 articles.
1. Presidential Address, 2020—Using Technology to Deliver Services and Supports in Homes, Neighborhoods, and Communities: Evidence and Promise 2. Expressive language sampling as a source of outcome measures for treatment studies in fragile X syndrome: feasibility, practice effects, test-retest reliability, and construct validity 3. Language development and fragile X syndrome: Profiles, syndrome-specificity, and within-syndrome differences 4. Abbeduto, L. , Bullard, L. , Nelson, S. , Banasik, A. , Tempero Feigles, R. , Nguyen, V. , & Elhasan, S. (2019). Using technology to bring treatments to families affected by autism and related neurodevelopmental disorders in their communities. In E. Grigorenko , Y. Shtyrov , & P. McCardle (Eds.), All about language: Science, theory, and practice. Brookes. 5. Psychological Well-Being and Coping in Mothers of Youths With Autism, Down Syndrome, orFragile X Syndrome
Cited by
1 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
|
|