Hernia registry as the first stage of the development of a ‘learning healthcare system'

Abstract

This paper aims to assess the effectiveness of current approaches to information exchange among key actors in the healthcare system and their impact on healthcare delivery. Specifically, it compares existing approaches to collecting medical data in herniology and explores their potential use in ‘learning healthcare systems'. However, current nosological registries do not fully meet the needs of these systems. One solution is to modify medical information systems to serve as a source of medical data of sufficient quality to supplement existing medical data lakes. Achieving this requires collaboration among clinicians, researchers, medical information system engineers, and data scientists. Establishing legal regulations for the transfer of medical data to scientific and educational organizations is necessary to fully realize the potential of this new type of nosological registry for advancing science and medicine.