Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking-Reference-Cited by-同舟云学术

Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking

Published:2015-07-08 Issue:7 Volume:10 Page:e0129893
ISSN:1932-6203
Container-title:PLOS ONE
language:en
Short-container-title:PLoS ONE

Author:

Joly Yann,Dalpé Gratien,So Derek,Birko Stanislav

Publisher

Public Library of Science (PLoS)

Subject

Multidisciplinary

Reference48 articles.

1. Biobank Lexicon [Internet]. Montreal: Public Population Project in Genomics and Society; c2015 [cited 2014 Nov 21]. Available: http://www.p3g.org/biobank-lexicon.

2. Genebanks: a comparison of eight proposed international genetic databases;MA Austin;Community Genet,2003

3. Biobanks, consent and claims of consensus;Z Master;Nature Methods,2012

4. Data sharing, biobanks and informed consent: a research paradox?;C Allen;McGill J L Health,2013

5. Promoting access to public research data for scientific, economic, and social development;P Arzberger;Data Sci J,2004

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