Systems that support hearing families with deaf children: A scoping review

Author:

Terry JuliaORCID,Rance Jaynie

Abstract

Background Over 90% of deaf children are born to hearing parents who have limited knowledge about deafness and require comprehensive support and information to support and communicate with their deaf child. However, little is known about the systems that support hearing families with deaf children. We performed a scoping review to provide an overview of current literature on the topic. Methods The protocol of the scoping review was prepared using the PRISMA statement guidelines for scoping reviews. Relevant search terms were used to identify eligible studies following discussion with the study’s steering group. Databases searched were CINAHL, Medline, ProQuest Central and ASSIA, as well as grey literature from relevant journals and online sources. Included were studies published from 2000 to 2021 and available in English. Results A search of databases identified 1274 articles. After excluding duplicates, screening titles and abstracts and full texts, 65 papers matched the identified inclusion criteria. Results included 1 RCT, 7 comparative studies, 6 literature reviews, 4 PhD theses, and 47 further empirical studies. Conclusion There is limited quality evidence on what supports hearing parents with deaf children. It is evident that further studies are needed to ensure comprehensive support is accessible and effective for hearing parents of deaf children.

Funder

Research Capacity Building Collaboration Wales

Publisher

Public Library of Science (PLoS)

Subject

Multidisciplinary

Reference122 articles.

1. To Deaf or not to Deaf;K. Pudans-Smith;Psychology,2019

2. World Health Organisation (2021). Deafness and hearing loss. https://www.who.int/news-room/fact-sheets/detail/deafness-and-hearing-loss.

3. Deaf Child Worldwide (2022). About Deaf Child Worldwide. https://www.ndcs.org.uk/deaf-child-worldwide/about-deaf-child-worldwide/#:~:text=There%20are%20estimated%2034%20million,marginalised%20and%20poorest%20of%20communities.

4. Consortium for Research in Deaf Education (2019). CRIDE report on 2018/2019 survey on educational provision for deaf children https://www.ndcs.org.uk/media/6550/cride-2019-uk-wide-report-final.pdf.

5. Support for parents of deaf children: Common questions and informed, evidence-based answers;T Humphries;International journal of pediatric otorhinolaryngology,2019

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