Web medical information produces anxiety in parents of infants with suspected galactosemia-Reference-Cited by-同舟云学术

Web medical information produces anxiety in parents of infants with suspected galactosemia

Published:2019-02-12 Issue:2 Volume:34 Page:219-221
ISSN:2191-0308
Container-title:Reviews on Environmental Health
language:en
Short-container-title:

Author:

Iakovou Kostas¹,Schulpis Kleopatra²

Affiliation:

1. Institute of Child Health – Inborn Errors of Metabolism , Hivon and Papadiamantopoulou , 15773 Athens, Attica , Greece

2. Institute of Child Health – Inborn Errors of Metabolism , Hivon and Papadiamantopoulou , Athens, Attica , Greece

Abstract

Abstract Parents had already taken information about galactosemia from web medical pages because they were asked for a second blood sample from their infant suspected for the disease. All enzyme types of this disorder are diagnosed by neonatal screening perinatally and treated with a galactose (GAL) free diet. The most frequent information about the disease was mental retardation (100%), eye cataracts (100%) liver dysfunction (90.5%), speech delay (76.1%), hypoglycemia (69.0%), seizures (31.0), etc. Most clinical and laboratory information about galactosemia taken from the Internet was correct for the classical type of the disorder. A differentiation of the galactosemia enzyme types is needed.

Publisher

Walter de Gruyter GmbH

Subject

Public Health, Environmental and Occupational Health,Pollution,Health(social science)

Link

https://www.degruyter.com/document/doi/10.1515/reveh-2018-0064/pdf

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