‘I knew it wasn’t normal, I just didn’t know what to do about it’: adversity and caregiver support when growing up in a family with Huntington’s disease-Reference-Cited by-同舟云学术

‘I knew it wasn’t normal, I just didn’t know what to do about it’: adversity and caregiver support when growing up in a family with Huntington’s disease

Published:2021-04-22 Issue:2 Volume:37 Page:211-229
ISSN:0887-0446
Container-title:Psychology & Health
language:en
Short-container-title:Psychology & Health

Author:

Kjoelaas Siri¹^ORCID,Jensen Tine K.²³,Feragen Kristin B.¹

Affiliation:

1. Centre for Rare Disorders, Oslo University Hospital HF, Norway

2. Department of Psychology, University of Oslo, Norway

3. Norwegian Centre for Violence and Traumatic Stress Studies, Oslo, Norway

Publisher

Informa UK Limited

Subject

Public Health, Environmental and Occupational Health,Applied Psychology,Management Science and Operations Research,Mechanical Engineering,Energy Engineering and Power Technology

Link

https://www.tandfonline.com/doi/pdf/10.1080/08870446.2021.1907387

Reference23 articles.

1. Estimating the prevalence of depression associated with healthcare use in France using administrative databases

2. Adverse childhood experiences

3. Dysfunctional maltreatment-related cognitions in children and adolescents

4. “This could be me”: exploring the impact of genetic risk for Huntington’s disease young caregivers

5. Psychiatric Symptoms in Huntington’s Disease before Diagnosis: The Predict-HD Study

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1. Navigating parenthood in the face of amyotrophic lateral sclerosis: A qualitative exploration of partner experiences;Scandinavian Journal of Caring Sciences;2024-07-10

2. Experiences of young people growing up in a family with Huntington's disease: A meta‐ethnography of qualitative research;Journal of Genetic Counseling;2024-03-12

3. Huntington study group’s neuropsychology working group position on best practice recommendations for the clinical neuropsychological evaluation of patients with Huntington disease;The Clinical Neuropsychologist;2023-10-18

4. Social support experiences when growing up with a parent with Huntington’s disease;Health Psychology and Behavioral Medicine;2022-07-29

5. Dilemmas when talking about Huntington's disease: A qualitative study of offspring and caregiver experiences in Norway;Journal of Genetic Counseling;2022-07-29