The Genetic Family as Patient?
Author:
Affiliation:
1. McGill University
Publisher
Informa UK Limited
Subject
Health Policy,Issues, ethics and legal aspects
Link
https://www.tandfonline.com/doi/pdf/10.1080/15265161.2020.1754505
Reference7 articles.
1. Patient and Family Descriptions of Ethical Concerns
2. How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study
3. Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?
4. Genetic information and the family: are we our brother's keeper?
5. Model consent clauses for rare disease research
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