1. Dawkins HJS, Draghia-Akli R, Lasko P, Lau LPL, Jonker AH, Cutillo CM, et al. Progress in rare diseases research 2010-2016: an IRDiRC perspective. Clin Tranl Sci. 2018;11(1):11–20.
2. Global Alliance for Genomics and Health, “Framework for responsible sharing of genomics and health-related data; c2014. Available from:
https://www.ga4gh.org/genomic-data-toolkit/regulatory-ethics-toolkit/framework-for-responsible-sharing-of-genomic-and-health-related-data/
. [cited 2018 Dec 19]
3. World Medical Association. World medical association declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA. 2013;310(20):2191–4.
4. World Medical Association. World Medical Association Declaration of Taipei on Ethical Considerations regarding Health Databases and Biobanks. Available from:
https://www.wma.net/policies-post/wma-declaration-of-taipei-on-ethical-considerations-regarding-health-databases-and-biobanks/
. [cited 2018 Dec 19]
5. World Medical Association. World Medical Association Statement on Genetics and Medicine. Available from:
https://www.wma.net/policies-post/wma-statement-on-genetics-and-medicine/
. [cited 2018 Dec 19]