A qualitative exploration of the priorities and experiences of children with Duchenne muscular dystrophy, their parents, and healthcare professionals around weight management
Author:
Affiliation:
1. Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada
2. University of Toronto, Toronto, Canada
3. The Hospital for Sick Children, Toronto, Canada
Funder
Muscular Dystrophy Canada
Publisher
Informa UK Limited
Subject
Rehabilitation
Link
https://www.tandfonline.com/doi/pdf/10.1080/09638288.2021.2008528
Reference37 articles.
1. Evidence-based path to newborn screening for duchenne muscular dystrophy
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3. A Population-Based Study of Dystrophin Mutations in Canada
4. A review of nutrition in Duchenne muscular dystrophy
5. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management
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2. The struggle to belong: a qualitative exploration of challenges in social spaces faced by children with Duchenne muscular dystrophy attending neuromuscular disorders clinic;Disability and Rehabilitation;2024-08-24
3. “You Take This Day by Day, Come What May”: A Qualitative Study of the Psychosocial Impacts of Living with Duchenne Muscular Dystrophy;Advances in Therapy;2024-05-06
4. Putting weight‐related conversations into practice: Lessons learned from implementing a knowledge translation casebook in a disability context;Child: Care, Health and Development;2024-04-08
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