The struggle to belong: a qualitative exploration of challenges in social spaces faced by children with Duchenne muscular dystrophy attending neuromuscular disorders clinic-Reference-Cited by-同舟云学术

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The struggle to belong: a qualitative exploration of challenges in social spaces faced by children with Duchenne muscular dystrophy attending neuromuscular disorders clinic

Published:2024-08-24 Issue: Volume: Page:1-8
ISSN:0963-8288
Container-title:Disability and Rehabilitation
language:en
Short-container-title:Disability and Rehabilitation

Author:

Kumar Dinesh¹,Thomas Priya Treesa²,Kumar Gargi S.¹,M Arun²,Sahoo Sidhanta Kumar²,Sadasivan Arun³,Vengalil Seena⁴,Nalini Atchayaram⁴

Affiliation:

1. Neuropalliative and Supportive Care Project, NIMHANS, Bangalore, India

2. Department of Psychiatric Social Work, NIMHANS, Bangalore, India

3. Department of Counselling Psychology, Montfort College, Bangalore, India

4. Department of Neurology, NIMHANS, Bangalore, India

Publisher

Informa UK Limited

Link

https://www.tandfonline.com/doi/pdf/10.1080/09638288.2024.2394642

Reference39 articles.

1. Overview of gene therapy in spinal muscular atrophy and Duchenne muscular dystrophy

2. Life Expectancy in Duchenne Muscular Dystrophy

3. Emery AEH. Duchenne muscular dystrophy. 3rd ed. Oxford: Oxford University Press; 2003.

4. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management

5. Patterns of participation in recreational and leisure activities among children with complex physical disabilities

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