Patient experience of chronic illness care and complementary integrative health use: a cross-sectional study of patients with hypermobility spectrum disorders (HSD) and Ehlers–Danlos syndromes (EDS)
Author:
Affiliation:
1. Helfgott Research Institute, National University of Natural Medicine, Portland, OR, USA
2. Healthy Living Community Clinic, Portland, OR, USA
Publisher
Informa UK Limited
Subject
Rehabilitation
Link
https://www.tandfonline.com/doi/pdf/10.1080/09638288.2022.2131003
Reference49 articles.
1. Updates in Clinical and Genetics Aspects of Hypermobile Ehlers Danlos Syndrome
2. The Beighton Score as a measure of generalised joint hypermobility
3. A framework for the classification of joint hypermobility and related conditions
4. The 2017 international classification of the Ehlers-Danlos syndromes
5. Levy HP. Hypermobile Ehlers-Danlos Syndrome. 2004 Oct 22 [Updated 2018 Jun 21]. In: Adam MP, Everman DB, Mirzaa GM, et al., editors. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993–2022. Available from: https://www.ncbi.nlm.nih.gov/books/NBK1279/
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2. Diagnosis and treatment of the Ehlers-Danlos syndromes in China: synopsis of the first guidelines;Orphanet Journal of Rare Diseases;2024-05-13
3. Integrative medicine for hypermobility spectrum disorders (HSD) and Ehlers-Danlos syndromes (EDS): a feasibility study;Disability and Rehabilitation;2024-02-14
4. Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States;Disability and Rehabilitation;2023-02-11
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