Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States
Author:
Affiliation:
1. Department of Psychology, University of Minnesota Twin Cities, Minneapolis, MN, USA
Funder
Mortensen Travel & Research Award
University of Minnesota Psychology Department
Publisher
Informa UK Limited
Subject
Rehabilitation
Link
https://www.tandfonline.com/doi/pdf/10.1080/09638288.2023.2176554
Reference39 articles.
1. A framework for the classification of joint hypermobility and related conditions
2. Understanding the psychosocial impact of joint hypermobility syndrome and Ehlers–Danlos syndrome hypermobility type: a qualitative interview study
3. Living a restricted life with Ehlers-Danlos Syndrome (EDS)
4. The 2017 international classification of the Ehlers-Danlos syndromes
5. Disability in Adolescents and Adults Diagnosed With Hypermobility-Related Disorders: A Meta-Analysis
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3. Patient experiences of receiving a diagnosis of hypermobile Ehlers–Danlos syndrome;American Journal of Medical Genetics Part A;2024-03-28
4. Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region;Orphanet Journal of Rare Diseases;2024-03-14
5. Looking back and beyond the 2017 diagnostic criteria for hypermobile Ehlers‐Danlos syndrome: A retrospective cross‐sectional study from an Italian reference center;American Journal of Medical Genetics Part A;2023-09-29
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