Experiences of patients with facioscapulohumeral dystrophy with facial weakness: a qualitative study-Reference-Cited by-同舟云学术

Experiences of patients with facioscapulohumeral dystrophy with facial weakness: a qualitative study

Published:2021-09-16 Issue: Volume: Page:1-8
ISSN:0963-8288
Container-title:Disability and Rehabilitation
language:en
Short-container-title:Disability and Rehabilitation

Author:

Sezer Sümeyye¹^ORCID,Cup Edith H. C.²^ORCID,Roets-Merken Lieve M.³^ORCID,Lanser Anke⁴,Siemann Ietske⁵^ORCID,Weikamp Janneke G.⁶^ORCID,Mul Karlien¹^ORCID,van Engelen Baziel G.¹^ORCID,Satink Ton⁷^ORCID,Voermans Nicol C.¹^ORCID

Affiliation:

1. Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands

2. Department of Rehabilitation, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands

3. Radboud Institute for Health Science, Radboud University Medical Center, Nijmegen, The Netherlands

4. Patient Representative & Chairman FSHD Advocacy Group, Patient Organization for Muscular Disease Spierziekten Nederland, Baarn, The Netherlands

5. Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The Netherlands

6. Department of Rehabilitation, Donders Centre for Neuroscience, Radboud University Medical Center, Nijmegen, The Netherlands

7. Department of Occupational Therapy, HAN University of Applied Sciences, Nijmegen, The Netherlands

Publisher

Informa UK Limited

Subject

Rehabilitation

Link

https://www.tandfonline.com/doi/pdf/10.1080/09638288.2021.1973122

Reference30 articles.

1. It’s not just physical: a qualitative study regarding the illness experiences of people with facioscapulohumeral muscular dystrophy

2. Lanser A. FSHD heb je niet alleen. Amsterdam: Spierziekten Nederland; 2011.

3. Lanser A. FSHD in beeld, onmacht en veerkracht. Amsterdam: Stichting Pictoright; 2015.

4. Basics of Qualitative Research (3rd ed.): Techniques and Procedures for Developing Grounded Theory

5. Boeije H. Analysis in qualitative research. New York (NY): Sage Publications; 2009.

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