Quality of life and support needs in children, adolescents, and young adults with facioscapulohumeral dystrophy, a mixed-method study-Reference-Cited by-同舟云学术

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Quality of life and support needs in children, adolescents, and young adults with facioscapulohumeral dystrophy, a mixed-method study

Published:2024-05 Issue: Volume:50 Page:64-73
ISSN:1090-3798
Container-title:European Journal of Paediatric Neurology
language:en
Short-container-title:European Journal of Paediatric Neurology

Author:

Dijkstra Jildou N.^ORCID,Rasing Nathaniël B.^ORCID,Boon Helena T.M.^ORCID,Altena-Rensen Sandra,Cup Edith H.C.^ORCID,Lanser Anke,Siemann Ietske J.,van Engelen Baziel G.,Erasmus Corrie E.^ORCID,Voermans Nicol C.

Funder

Prinses Beatrix Spierfonds

Spieren voor Spieren

Publisher

Elsevier BV

Reference37 articles.

1. The genetics and Epigenetics of facioscapulohumeral muscular dystrophy;Himeda;Annu. Rev. Genom. Hum. Genet.,2019

2. A Pediatric review of facioscapulohumeral muscular dystrophy;Mah;J. Pediatr. Neurol.,2018

3. What's in a name? The clinical features of facioscapulohumeral muscular dystrophy;Mul;Practical Neurol.,2016

4. Facioscapulohumeral dystrophy in childhood: a nationwide natural history study;Goselink;Ann. Neurol.,2018

5. KIDSCREEN-52 quality-of-life measure for children and adolescents;Ravens-Sieberer;Expert Rev. Pharmacoecon. Outcomes Res.,2005

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