1. The Canary Foundation for Health Research (FUNCANIS), El Rosario, Spain
2. Health Services Research on Chronic Patients Network (REDISSEC), Madrid, Spain
3. The Biomedic Research Centre of Canary Islands (CIBICAN), Universidad de La Laguna, San Cristóbal de La Laguna, Spain
4. Clinical Psychology Department, Psychology and Methodology, University of La Laguna, San Cristóbal de La Laguna, Spain
5. The Evaluation Service of the Canary Health Service (SESCS), El Rosario, Spain
6. The Rare Diseases Research Institute (IIER), SpainRDR and CIBERER, Madrid, Spain
7. Department of Social Medicine and Public Health, Faculty of Public Health, Medical University of Plovdiv, Bulgaria
8. Institute for Rare Diseases, Bulgaria
9. Avedis Donabedian Research Institute (FAD), Barcelona, Spain
10. The Autonomous University of Barcelona (UAB), Barcelona, Spain