Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for mucocutaneous bleeding disorders

Author:

Sidonio, Jr Robert F.12ORCID,Bryant Paulette C.34,Di Paola Jorge56,Hale Sarah7,Heiman Meadow8,Horowitz G Shellye9,Humphrey Christi10,Jaffray Julie1112,Joyner Lora C.13ORCID,Kasthuri Raj14ORCID,Konkle Barbara A.15ORCID,Kouides Peter A.16ORCID,Montgomery Robert1718,Neeves Keith19202122ORCID,Randi Anna M.23ORCID,Scappe Nikole4,Tarango Cristina2425ORCID,Tickle Kelly1226,Trapane Pamela27ORCID,Wang Michael22ORCID,Waters Brittany26ORCID,Flood Veronica H.18ORCID

Affiliation:

1. Department of Pediatrics, Aflac Cancer and Blood Disorders, Atlanta, Georgia, USA

2. Hemophilia of Georgia Center for Bleeding and Clotting Disorders, Atlanta, Georgia, USA

3. Pediatric Hematology Oncology, St. Jude Affiliate Clinic at Novant Health Hemby Children’s Hospital, Charlotte, North Carolina, USA

4. National Hemophilia Foundation, New York, New York, USA

5. Department of Pediatrics, Washington University in St. Louis, St. Louis, Missouri, USA

6. Hematology/Oncology Department, Washington University in St. Louis, St. Louis, Missouri, USA

7. Takeda Pharmaceuticals U.S.A, Lexington, Massachusetts, USA

8. Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USA

9. Hemophilia Federation of America, Washington, DC, USA

10. Hemophilia of Georgia, Atlanta, Georgia

11. Department of Pediatrics, Children’s Hospital Los Angeles, Los Angeles, California, USA

12. Keck School of Medicine, University of Southern California, Los Angeles, California, USA

13. East Carolina University Hemophilia Treatment Center, Greenville, North Carolina, USA

14. Division of Hematology, UNC Blood Research Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA

15. Washington Center for Bleeding Disorders, Seattle, Washington, USA

16. Mary M. Gooley Hemophilia Center, Rochester, New York, USA

17. Blood Center of Wisconsin, Versiti, Milwaukee, Wisconsin, USA

18. Department of Pediatrics, Medical College of Wisconsin, Milwaukee, Wisconsin, USA

19. Hemophilia and Thrombosis Center, University of Colorado Denver, Denver, Colorado, USA

20. Department of Bioengineering, University of Colorado Denver, Denver, Colorado, USA

21. Department of Pediatrics, University of Colorado Denver, Denver, Colorado, USA

22. Department of pediatrics, Anschutz Medical Campus, Aurora, Colorado, USA

23. National Heart and Lung Institute, Imperial College, London, UK

24. Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA

25. Pediatrics, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio, USA

26. Children’s Healthcare of Atlanta, Atlanta, Georgia, USA

27. Division of Pediatric Genetics, Department of Pediatrics, University of Florida College of Medicine-Jacksonville, Jacksonville, Florida, USA

Funder

State of the Science Research Summit and this manuscript were funded by the National Hemophilia Foundation

Publisher

Informa UK Limited

Subject

Hematology

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