Lived experience experts: a name created by us for us-Reference-Cited by-同舟云学术

Lived experience experts: a name created by us for us

Published:2023-03-15 Issue:sup1 Volume:16 Page:7-11
ISSN:1747-4086
Container-title:Expert Review of Hematology
language:en
Short-container-title:Expert Review of Hematology

Author:

Vázquez Esmeralda¹²,Kim Michelle³⁴,Santaella Maria E.²^ORCID

Affiliation:

1. Patient Author, Lived Experience Expert, Chicago, Il, USA

2. National Hemophilia Foundation, New York, NY, USA

3. Patient Author, Lived Experience Expert, Pasadena, CA, USA

4. Hemophilia Foundation of Southern California, Pasadena, CA, USA

Funder

the National Hemophilia Foundation

Publisher

Informa UK Limited

Subject

Hematology

Link

https://www.tandfonline.com/doi/pdf/10.1080/17474086.2023.2178410

Reference26 articles.

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2. A Model for a Regional System of Care to Promote the Health and Well-Being of People with Rare Chronic Genetic Disorders

3. Hemophilia treatment in 2021: Choosing the”optimal” treatment using an integrative, patient-oriented approach to shared decision-making between patients and clinicians

4. National Institutes of Health. NIH clinical center patient handbook [cited 2022 Dec 11]. Available from: https://clinicalcenter.nih.gov/sites/nihinternet/files/internet-files/participate/_pdf/pthandbook.pdf.

5. U.S. Food and Drug Administration. FDA patient engagement overview [cited 2022 Dec 13]. Available from: https://www.fda.gov/patients/learn-about-fda-patient-engagement/fda-patient-engagement-overview.

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