Evaluation of the burdens and benefits of participation in research by parents of children with life-limiting illnesses
Author:
Publisher
RCN Publishing Ltd.
Subject
Research and Theory
Link
https://journals.rcni.com/doi/pdf/10.7748/nr.2019.e1617
Reference23 articles.
1. From qualitative work to intervention development in pediatric oncology palliative care research;Journal of Pediatric Oncology Nursing,2013
2. Factors affecting recruitment and participation of bereaved parents and siblings in grief research;Progress in Palliative Care,2014
3. The risks and benefits of conducting sensitive research to understand parental experiences of caring for infants with hypoxic-ischemic encephalopathy;The Journal of Neuroscience Nursing,2016
4. Family caregiver participation in palliative care research: challenging the myth;Journal of Pain and Symptom Management,2017
5. Dying persons’ perspectives on, or experiences of, participating in research: an integrative review;Palliative Medicine,2017
Cited by 3 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
1. “It Can Be Hard But It's Not Bad”: Three Questions to Solicit Caregiver Perceptions of Benefits and Burdens to Participating in Pediatric Palliative Care Research;Journal of Palliative Medicine;2021-11-01
2. Research participation in palliative medicine—benefits and barriers for patients and families: rapid review and thematic synthesis;BMJ Supportive & Palliative Care;2021-08-17
3. Impact upon the Child and Parents;Nursing Care of Children and Young People with Long‐Term Conditions;2020-12-23
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