“It Can Be Hard But It's Not Bad”: Three Questions to Solicit Caregiver Perceptions of Benefits and Burdens to Participating in Pediatric Palliative Care Research-Reference-Cited by-同舟云学术

“It Can Be Hard But It's Not Bad”: Three Questions to Solicit Caregiver Perceptions of Benefits and Burdens to Participating in Pediatric Palliative Care Research

Published:2021-11-01 Issue:11 Volume:24 Page:1641-1649
ISSN:1096-6218
Container-title:Journal of Palliative Medicine
language:en
Short-container-title:Journal of Palliative Medicine

Author:

Reggio Cheryl¹,Mowbray Catriona²,Waldron Mia K.¹³,Rood Adelaide L.⁴,Sibilia Gabriella⁵,Mooney-Doyle Kim⁶,Hinds Pamela S.¹³

Affiliation:

1. Division of Nursing, Children's National Hospital, Washington, DC, USA.

2. Division of Oncology, Children's National Hospital, Washington, DC, USA.

3. Department of Pediatrics, George Washington University, Washington, DC, USA.

4. Department of Nursing, University of Vermont, Burlington, Vermont, USA.

5. The Conway School of Nursing, The Catholic University of America, Washington, DC, USA.

6. University of Maryland School of Nursing, Baltimore, Maryland, USA.

Publisher

Mary Ann Liebert Inc

Subject

Anesthesiology and Pain Medicine,General Medicine,General Nursing

Link

https://www.liebertpub.com/doi/pdf/10.1089/jpm.2020.0618

Reference39 articles.

1. The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review

2. Researching chronic childhood illness: the example of childhood cancer

3. Addressing Ethical Concerns Regarding Pediatric Palliative Care Research

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