Parenting a Child with Phenylketonuria (PKU): an Interpretative Phenomenological Analysis (IPA) of the Experience of Parents
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Published:2018-02-21
Issue:5
Volume:27
Page:1074-1086
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ISSN:1059-7700
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Container-title:Journal of Genetic Counseling
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language:en
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Short-container-title:J Genet Counsel
Author:
Carpenter Katie, Wittkowski AnjaORCID, Hare Dougal J., Medford Emma, Rust Stewart, Jones Simon A., Smith Debbie M.
Funder
University of Manchester
Subject
Genetics(clinical)
Reference61 articles.
1. Abidin, R. R. (1990). Introduction to the special issue: the stresses of parenting. Journal of Clinical Child Psychology, 19(4), 298–301. 2. Al Hafid, N., & Christodoulou, J. (2015). Phenylketonuria: a review of current and future treatments. Translational Pediatrics, 4(4), 304. 3. Awiszus, D., & Unger, I. (1990). Coping with PKU: results of narrative interviews with parents. European Journal of Pediatrics, 149(1), 45–51. 4. Bilginsoy, C., Waitzman, N., Leonard, C. O., & Ernst, S. L. (2005). Living with phenylketonuria: perspectives of patients and their families. Journal of Inherited Metabolic Disease, 28(5), 639–649. 5. Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child & Family Behavior Therapy, 28(1), 1–18.
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