Caregiving experiences of caregivers of children with rare diseases: A qualitative meta-synthesis
Author:
Publisher
Elsevier BV
Subject
Pediatrics
Reference68 articles.
1. Australian families living with rare disease: Experiences of diagnosis, health services use and needs for psychosocial support;Anderson;Orphanet Journal of Rare Diseases,2013
2. JBI manual for evidence synthesis;Aromataris,2020
3. Alone in a crowd? Parents of children with rare Diseases’ experiences of navigating the healthcare system;Baumbusch;Journal of Genetic Counseling,2019
4. Parental reflections on the diagnostic process for Duchenne muscular dystrophy: A qualitative study;Bendixen;Journal of Pediatric Health Care,2017
5. Nurses’ experiences on the road during transition into community care: An exploratory descriptive qualitative study in Singapore;Bin Muhsin;Health & Social Care in the Community,2020
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