Enrolling Genomics Research Participants through a Clinical Setting: the Impact of Existing Clinical Relationships on Informed Consent and Expectations for Return of Research Results-Reference-Cited by-同舟云学术

Enrolling Genomics Research Participants through a Clinical Setting: the Impact of Existing Clinical Relationships on Informed Consent and Expectations for Return of Research Results

Published:2017-09-20 Issue:1 Volume:27 Page:263-273
ISSN:1059-7700
Container-title:Journal of Genetic Counseling
language:en
Short-container-title:J Genet Counsel

Author:

Berrios Courtney,James Cynthia A.,Raraigh Karen,Bollinger Juli,Murray Brittney,Tichnell Crystal,Applegate Carolyn D.,Bergner Amanda L.

Funder

Johns Hopkins McKusick-Nathans Institute of Genetic Medicine

Publisher

Wiley

Subject

Genetics(clinical)

Link

http://link.springer.com/article/10.1007/s10897-017-0143-2/fulltext.html

Reference34 articles.

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3. Bernhardt, B. A., Tambor, E. S., Fraser, G., Wissow, L. S., & Geller, G. (2003). Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: Implications for informed consent. American Journal of Medical Genetics. Part A, 116A(4), 315–323.

4. Bernhardt, B. A., Roche, M. I., Perry, D. L., Scollon, S. R., Tomlinson, A. N., & Skinner, D. (2015). Experiences with obtaining informed consent for genomic sequencing. American Journal of Medical Genetics Part A, 167(11), 2635–2646.

5. Biesecker, B. B., Klein, W., Lewis, K. L., Fisher, T. C., Wright, M. F., Biesecker, L. G., et al. (2014). How do research participants perceive “uncertainty” in genome sequencing? Genetics in Medicine, 16(12), 977–980.

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