Experiences of Women Who Have Had Carrier Testing for Duchenne Muscular Dystrophy and Becker Muscular Dystrophy During Adolescence

Author:

Fraser Harry G.,Redmond Rebecca Z.ORCID,Scotcher Diana F.

Funder

University of Manchester

Publisher

Wiley

Subject

Genetics (clinical)

Reference43 articles.

1. American Society of Human Genetics, American College of Medical Genetics (ASHG/ACMG). (1995). Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Journal of Human Genetics, 57, 1233–1241.

2. Aronson, J. (1995). A pragmatic view of thematic analysis. The Qualitative Report, 2(1), 1–3.

3. Borry, P., Fryns, J. P., Schotsmans, P., & Dierickx, K. (2005). Attitudes towards carrier testing in minors. Journal of Genetic Counseling, 16, 341–352.

4. Borry, P., Fryns, J. P., Schotsmans, P., & Dierickx, K. (2006a). Carrier testing in minors: a systematic review of guidelines and position papers. European Journal of Human Genetics, 14, 133–138.

5. Borry, P., Stultiëns, L., Nys, H., & Dierickx, K. (2006b). Informed consent in children and young people: an introduction. Revista Latinoamericana de Bioética, 10.

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