Public’s Views toward Return of Secondary Results in Genomic Sequencing: It’s (Almost) All about the Choice
Author:
Funder
National Human Genome Research Institute
Publisher
Wiley
Subject
Genetics(clinical)
Link
http://link.springer.com/article/10.1007/s10897-017-0095-6/fulltext.html
Reference58 articles.
1. ACMG Board of Directors. (2015). ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing. Genetics in Medicine: Official Journal of the American College of Medical Genetics, 17, 68–69. doi: 10.1038/gim.2014.151 .
2. American College of Medical Genetics and Genomics. (2013). Incidental findings in clinical genomics: a clarification. Genetics in Medicine: Official Journal of the American College of Medical Genetics, 15, 664–666. doi: 10.1038/gim.2013.82 .
3. Appelbaum, P. S., Fyer, A., Klitzman, R. L., Martinez, J., Parens, E., Zhang, Y., & Chung, W. K. (2015). Researchers’ views on informed consent for return of secondary results in genomic research. Genetics in Medicine: Official Journal of the American College of Medical Genetics, 17, 644–650. doi: 10.1038/gim.2014.163 .
4. Berg, J. S., Khoury, M. J., & Evans, J. P. (2011). Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time. Genetics in Medicine: Official Journal of the American College of Medical Genetics, 13, 499–504. doi: 10.1097/GIM.0b013e318220aaba .
5. Bernhardt, B. A., Roche, M. I., Perry, D. L., Scollon, S. R., Tomlinson, A. N., & Skinner, D. (2015). Experiences with obtaining informed consent for genomic sequencing. American Journal of Medical Genetics. Part A, 167A, 2635–2646. doi: 10.1002/ajmg.a.37256 .
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