Adopting a Sustainable Community of Practice Model when Developing a Service to Support Patients with Epidermolysis Bullosa (EB): A Stakeholder-Centered Approach-Reference-Cited by-同舟云学术

Adopting a Sustainable Community of Practice Model when Developing a Service to Support Patients with Epidermolysis Bullosa (EB): A Stakeholder-Centered Approach

Published:2014-11-28 Issue:1 Volume:8 Page:51-63
ISSN:1178-1653
Container-title:The Patient - Patient-Centered Outcomes Research
language:en
Short-container-title:Patient

Author:

Gowran Rosemary Joan,Kennan Avril,Marshall Siobhán,Mulcahy Irene,Ní Mhaille Sile,Beasley Sarah,Devlin Mark

Publisher

Springer Science and Business Media LLC

Link

http://link.springer.com/content/pdf/10.1007/s40271-014-0097-5.pdf

Reference45 articles.

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2. Fine JD. A genetic disease of altered cell adhesion and wound healing, and the possible clinical utility of topically applied thymosin. Ann NY Acad Sci. 2007;1112:396–406.7.

3. Debra Ireland. EpidermolysisBullosa (EB) Q & A. 2013 http://www.debraireland.org/about-eb/eb-qanda . Accessed 7 May 2014.

4. Frew JW, Martin LK, Nijsten T, Murrell DF. Quality of life evaluation in epidermolysisbullosa (EB) through the development of the QOLEB questionnaire: an EB-specific quality of life instrument. Br J Dermatol. 2009;161:1323–30.

5. Sarkar R, Bansal S, Garg VK. EpidermolysisBullosa: where do we stand? Indian J Dermatol Venereol Leprol. 2011;77(4):431–8.

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