Caring for a child with Epidermolysis Bullosa: a scoping review on the family impacts and support needs
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Cambridge Media
Cited by 6 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
1. Epidermolysis Bullosa in Spain: A Qualitative Analysis of Its Social Impact on Families With Diagnosed Minors;Health Expectations;2024-06-29
2. The psychosocial impact of a chronic disease in Ireland: Burdens and helpful practices for a life with epidermolysis bullosa;Health Expectations;2024-06
3. Facing the complex challenges of people with epidermolysis bullosa in Austria: a mixed methods study on burdens and helpful practices;Orphanet Journal of Rare Diseases;2024-05-21
4. Exploring the Impact of Epidermolysis Bullosa on Parents and Caregivers: A Cross-Cultural Validation of the Epidermolysis Bullosa Burden of Disease Questionnaire;Clinical, Cosmetic and Investigational Dermatology;2024-05
5. Translation, cultural adaptation and validation of the German Quality of Life in Epidermolysis Bullosa (QOLEB) questionnaire;Journal of Health Psychology;2024-02-18
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