Considering consent: a structural equation modelling analysis of factors influencing decisional quality when accepting newborn screening
Author:
Publisher
Wiley
Subject
Genetics(clinical),Genetics
Link
http://link.springer.com/content/pdf/10.1007/s10545-013-9651-x
Reference61 articles.
1. Al-Jader LN, Goodchild MC, Ryley HC, Harper PS (1990) Attitudes of parents of cystic fibrosis children towards neonatal screening and antenatal diagnosis. Clin Genet 38:460–465
2. Annas GJ (1982) Mandatory PKU screening: the other side of the looking glass. 72:1401-1403
3. Araia MH, Wilson BJ, Chakraborty P et al (2012) Factors associated with knowledge of and satisfaction with newborn screening education: a survey of mothers. Genet Med 14:963–970
4. Bekker H, Thornton JG, Airey CM, et al (1999) Informed decision making: an annotated bibliography and systematic review. 3(1)
5. Bodamer OA, Hoffmann GF, Lindner M (2007) Expanded newborn screening in Europe 2007. J Inherit Metab Dis 30:439–444
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