Developing Data Sharing Models for Health Research with Real-World Data: A Scoping Review of Patient and Public Preferences
Author:
Funder
Genome Canada
Publisher
Springer Science and Business Media LLC
Subject
Health Information Management,Health Informatics,Information Systems,Medicine (miscellaneous)
Link
https://link.springer.com/content/pdf/10.1007/s10916-022-01875-3.pdf
Reference51 articles.
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3. Sheng J, Amankwah-Amoah J, Khan Z, Wang X (2021) Covid-19 pandemic in the new era of big data analytics: methodological innovations and future research directions. British Journal of Management 32(4):1164-1183. https://doi.org/10.1111/1467-8551.12441
4. Galea S, Abdalla SM, Sturchio JL (2020) Social determinants of health, data science, and decision-making: Forging a transdisciplinary synthesis. PLoS Med 17(6):e1003174. https://doi.org/10.1371/journal.pmed.1003174
5. Courbier S, Dimond R, Bros-Facer V (2019) Share and protect our health data: an evidence-based approach to rare disease patients' perspectives on data sharing and data protection - quantitative survey and recommendations. Orphanet J Rare Dis. 14(1):175. https://doi.org/10.1186/s13023-019-1123-4
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