Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations
Author:
Funder
Seventh Framework Programme
Publisher
Springer Science and Business Media LLC
Subject
Pharmacology (medical),Genetics(clinical),General Medicine
Link
http://link.springer.com/content/pdf/10.1186/s13023-019-1123-4.pdf
Reference45 articles.
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3. Attitudes towards data sharing, you Gov. 2018. https://docs.google.com/spreadsheets/d/1_-ntuc7lZEeXxLdvaFsfqrugjNFQUPTI7B377GOXnQo/edit#gid=2093652055 . Accessed Jan 2019.
4. Browson R, Chriqui J, Stamatakis K. Understanding evidence-based public health policy. Am J Public Health. 2009;99(9):1576–83.
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