Understanding How Parents Make Meaning of Their Child’s Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation

Author:

Mackie Thomas I.,Schaefer Ana J.,Ramella Leah,Carter Alice S.,Eisenhower Abbey,Jimenez Manuel E.,Fettig Angel,Sheldrick R. Christopher

Abstract

AbstractA family’s journey in understanding their child’s behaviors in relation to Autism Spectrum Disorders (ASD) frequently begins with screening. This study aimed to characterize the interpretive processes that unfold for parents. We employed longitudinal interviews with 19 families engaged in a community-based multi-stage screening protocol. Parents participated in 1–6 interviews dependent upon children’s length of engagement in the screening protocol; data were analyzed through modified grounded theory. Parents who moved towards understanding their child’s behaviors as ASD expressed (1) sensitization to ASD symptoms, (2) differentiation from other developmental conditions, and (3) use of the ASD diagnosis to explain the etiology of concerning behaviors. Identifying interpretive processes involved during ASD screening provides new opportunities for shared decision-making.

Funder

National Institute of Mental Health

Health Resources and Services Administration

Publisher

Springer Science and Business Media LLC

Subject

Developmental and Educational Psychology

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