An Internet support group for parents of children with neurofibromatosis type 1: a qualitative analysis
Author:
Publisher
Springer Science and Business Media LLC
Subject
Genetics (clinical),Public Health, Environmental and Occupational Health,Epidemiology
Link
http://link.springer.com/article/10.1007/s12687-018-0360-x/fulltext.html
Reference29 articles.
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2. Allen T, Willard VW, Anderson LM, Hardy KK, Bonner MJ (2016) Social functioning and facial expression recognition in children with neurofibromatosis type 1. J Intellect Disabil Res 60(3):282–293. https://doi.org/10.1111/jir.12248
3. Barke J, Coad J, Harcourt D (2016a) Parents’ experiences of caring for a young person with neurofibromatosis type 1 (NF1): a qualitative study. J Community Genet 7:33–39
4. Barke J, Coad J, Harcourt D (2016b) The role of appearance in adolescents’ experiences of neurofibromatosis type 1: a survey of young people and parents. J Genet Couns 25(5):1054–1062. https://doi.org/10.1007/s10897-016-9944-y
5. Binford Hopf RB, Le Grange D, Moessner M, Bauer S (2013) Internet-based chat support groups for parents in family-based treatment for adolescent eating disorders: a pilot study. Eur Eat Disord Rev 21(3):215–223. https://doi.org/10.1002/erv.2196
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