Quality of life in home-ventilated children and their families
Author:
Funder
Spanish Society of Pneumology and Thoracic Surgery
Publisher
Springer Science and Business Media LLC
Subject
Pediatrics, Perinatology and Child Health
Link
http://link.springer.com/article/10.1007/s00431-017-2983-z/fulltext.html
Reference41 articles.
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2. Bertrand P, Fehlmann E, Lizama M, Holmgren N, Silva M, Sánchez I (2006) Home ventilatory assistance in Chilean children: 12 years’ experience. Arch Bronconeumol 42:165–170
3. Carnevale FA, Alexander E, Davis M, Rennick J, Troini R (2006) Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics 117:e48–e60. doi: 10.1542/peds.2005-0789
4. Chan KS, Mangione-Smith R, Burwinkle TM, Rosen M, Varni JW (2005) The PedsQL: reliability and validity of the short-form generic core scales and Asthma Module. Med Care 43:256–265
5. Dybwik K, Tollåli T, Nielsen EW, Brinchmann BS (2011) “Fighting the system”: families caring for ventilator-dependent children and adults with complex health care needs at home. BMC Health Serv Res 11:156. doi: 10.1186/1472-6963-11-156
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