Transitioning children using home invasive mechanical ventilation from hospital to home: Discharge criteria, disparities, and ethical considerations

Author:

Henningfeld Jennifer1ORCID,Friedrich Annie B.2ORCID,Flanagan Grace3ORCID,Griffith Cynthia3ORCID,Hughes Anna4ORCID,Molkentine Lisa3ORCID,Steuart Rebecca5ORCID,Wilkinson Stuart6ORCID,Baker Christopher D.7ORCID

Affiliation:

1. Department of Pulmonary and Sleep Medicine Medical College of Wisconsin Milwaukee Wisconsin USA

2. Center for Bioethics and Medical Humanities and Institute for Health and Equity Medical College of Wisconsin Milwaukee Wisconsin USA

3. Department of Respiratory Care Services Children's Wisconsin Milwaukee Wisconsin USA

4. Paediatric Respiratory Department Royal Manchester Children's Hospital Manchester UK

5. Section of Special Needs and Complex Care Program Medical College of Wisconsin Milwaukee Wisconsin USA

6. Paedaitric Respiratory Department, Royal Manchester Childrens Hospital Manchester University Manchester UK

7. Department of Pediatrics—Pulmonary and Sleep Medicine University of Colorado School of Medicine Aurora Colorado USA

Abstract

AbstractChildren using home invasive mechanical ventilation (HIMV), a valuable therapeutic option for chronic respiratory failure, constitute a growing population. Transitioning children using HIMV from hospital to home care is a complex process that requires a multidisciplinary approach involving healthcare professionals, caregivers, and community resources. Medical stability, caregiver competence, and home environment suitability are essential factors in determining discharge readiness. Caregiver education and training play a pivotal role in ensuring safe and effective home care. Simulation training and staged education progression are effective strategies for equipping caregivers with necessary skills. Resource limitations, inadequate home nursing support, and disparities in available community resources are common obstacles to successful HIMV discharge. International perspectives shed light on diverse healthcare systems and challenges faced by caregivers worldwide. While standardizing guidelines for HIMV discharge may be complex, collaboration among healthcare providers and the development of evidence‐based regional guidelines can improve outcomes for children using HIMV and their caregivers. This review seeks to synthesize literature, provide expert guidance based on experience, and highlight components to safely discharge children using HIMV. It further assesses disparities and divergences within regional and international healthcare systems while addressing relevant ethical considerations.

Publisher

Wiley

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