Patient-reported outcomes and the identification of subgroups of atrial fibrillation patients: a retrospective cohort study of linked clinical registry and administrative data

Author:

Kwon Jae-YungORCID,Sawatzky Richard,Baumbusch Jennifer,Ratner Pamela A.

Funder

University of British Columbia

Canadian Nurses Foundation

Lyle Creelman Endowment

Publisher

Springer Science and Business Media LLC

Subject

Public Health, Environmental and Occupational Health

Reference57 articles.

1. Daugherty, S. E., Lee, S. B., Nowell, B., Peay, H., Solomon, D., Valbrun, T. G., et al. (2018). The increasing focus on the patient in patient registries. In R. E. Gliklich, N. A. Dreyer, & M. B. Leavy (Eds.), Registries for evaluating patient outcomes: A user’s guide, addendum [Internet] (3rd ed.). Rockville, MD: Agency for Healthcare Research and Quality (US). Retrieved from https://www.ncbi.nlm.nih.gov/books/NBK493820/

2. McDonald, L., Malcolm, B., Ramagopalan, S., & Syrad, H. (2019). Real-world data and the patient perspective: The PROmise of social media? BMC Medicine, 17(1), 11. https://doi.org/10.1186/s12916-018-1247-8.

3. Rivera, S. C., Kyte, D. G., Aiyegbusi, O. L., Slade, A. L., McMullan, C., & Calvert, M. J. (2019). The impact of patient-reported outcome (PRO) data from clinical trials: A systematic review and critical analysis. Health and Quality of Life Outcomes, 17(1), 156. https://doi.org/10.1186/s12955-019-1220-z.

4. Bhatt, D. L., Drozda, J. P., Shahian, D. M., Chan, P. S., Fonarow, G. C., Heidenreich, P. A., et al. (2015). ACC/AHA/STS Statement on the future of registries and the performance measurement enterprise: A report of the American College of Cardiology/American Heart Association Task Force on Performance Measures and The Society of Thoracic Surgeons. Journal of the American College of Cardiology, 66(20), 2230–2245. https://doi.org/10.1016/j.jacc.2015.07.010.

5. Deshpande, P. R., Rajan, S., Sudeepthi, B. L., & Abdul Nazir, C. P. (2011). Patient-reported outcomes: A new era in clinical research. Perspectives in Clinical Research, 2(4), 137–144. https://doi.org/10.4103/2229-3485.86879.

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