Patient Engagement in Research: Considerations in Creating a Registry for Adults with Congenital Heart Disease-Reference-Cited by-同舟云学术

Patient Engagement in Research: Considerations in Creating a Registry for Adults with Congenital Heart Disease

Published:2023-12-22 Issue:1 Volume:26 Page:15-21
ISSN:1523-3782
Container-title:Current Cardiology Reports
language:en
Short-container-title:Curr Cardiol Rep

Author:

Phillippi Ruth,Leezer Scott,Messmer Mindi,Hile Danielle,John Anitha S.^ORCID

Publisher

Springer Science and Business Media LLC

Subject

Cardiology and Cardiovascular Medicine

Link

https://link.springer.com/content/pdf/10.1007/s11886-023-02013-2.pdf

Reference25 articles.

1. PCORI engagement rubric. Patient-Centered Outcomes Research Institute (PCORI). Published February 4, 2014. Updated October 12, 2015. https://www.pcori.org/sites/default/files/Engagement-Rubric.pdf.

2. Forsythe LP, Carman K, Szydlowski V, et al. Patient engagement in research: early findings from the Patient-Centered Outcomes Research Institute. Health Aff. 2019;38(3):359–67.

3. Heckert AL, Forsythe LP, Carman K, et al. Researchers, patients, and other stakeholders’ perspectives on challenges to and strategies for engagement. Res Involv Engagem. 2020;6(60). https://doi.org/10.1186/s40900-020-00227-0.

4. Hemphill R, Forsythe LP, Heckert AL, et al. What motivates patients and caregivers to engage in health research and how engagement affects their lives: qualitative survey findings. Health Expect. 2020;23(2):328–36.

5. • Maurer M, Mangrum R, Hilliard-Boone T, et al. Understanding the influence and impact of stakeholder engagement in patient-centered outcomes research: a qualitative study. J Gen Intern Med. 2022;37(Suppl 1):6–13. This study examined the importance and role of partner engagement in PCOR, setting the stage for future study design.

Cited by 1 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. The Congenital Heart Initiative: Results from a Patient-Centered Registry for Adults with Congenital Heart Disease;2024-05-17