What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings

Author:

Hemphill Rachel1ORCID,Forsythe Laura P.1ORCID,Heckert Andrea L.1,Amolegbe Andrew2,Maurer Maureen2,Carman Kristin L.1,Mangrum Rikki2,Stewart Lisa1,Fearon Ninma1,Esmail Laura1

Affiliation:

1. Patient‐Centered Outcomes Research Institute Washington DC USA

2. American Institutes for Research Chapel Hill NC USA

Funder

Patient-Centered Outcomes Research Institute

Publisher

Wiley

Subject

Public Health, Environmental and Occupational Health

Reference28 articles.

1. REVIEW OF COMMUNITY-BASED RESEARCH: Assessing Partnership Approaches to Improve Public Health

2. Participatory research: what is the history? has the purpose changed?;Macaulay A;Fam Pract,2017

3. Department of Health and Human Services Food and Drug Administration.The voice of the patient: a series of reports from FDA's patient‐focused drug development initiative.2018;https://www.fda.gov/ForIndustry/UserFees/PrescriptionDrugUserFee/ucm368342.htm.

4. Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

5. Patient And Family Engagement: A Framework For Understanding The Elements And Developing Interventions And Policies

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