Rare Diseases and Legal, Ethical, Technical and Societal Needs (Part II)
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Publisher
Springer International Publishing
Link
https://link.springer.com/content/pdf/10.1007/978-3-031-42944-6_35
Reference13 articles.
1. Amselem S, Gueguen S, Weinbach J, Clement A, Landais P (2021) RaDiCo, the French national research program on rare disease cohorts. Orphanet J Rare Dis 16:454. https://doi.org/10.1186/s13023-021-02089-5
2. Baldovino S, Menegatti E, Roccatello D, Sciascia S (2017) Immunological rare diseases. In: Posada de la Paz M, Taruscio D, Groft SC (eds) Rare diseases epidemiology: update and overview, 2nd edn. Springer, pp 497–511
3. Bax BE (2021) Biomarkers in rare diseases. Int J Mol Sci 22(2):673. https://doi.org/10.3390/ijms22020673
4. Contreras JL, Reichman J (2005) Sharing by design: data and decentralized commons. Science 350(6266):1312
5. Courbier S, Dimond R, Bros-Facer V (2019) Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection – quantitative survey and recommendations. Orphanet J Rare Dis 14:175. https://doi.org/10.1186/s13023-019-1123-4
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